OC26 Educating paediatric inflammatory bowel disease clinical nurse specialists: are we doing enough? (2025)

OC26 Educating paediatric inflammatory bowel disease clinical nurse specialists: are we doing enough? (1)

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OC26 Educating paediatric inflammatory bowel disease clinical nurse specialists: are we doing enough?

  1. Gemma Lee1,
  2. Pippa Taylor2,
  3. Nancy Mew3,
  4. Elena Gil-Zaragozano2
  1. 1Evelina London Children’s Hospital
  2. 2Bristol Royal Hospital for Children
  3. 3Oxford University Hospital, UK

Abstract

The Clinical Nurse Specialist (CNS) plays a pivotal role in the care of young people with Inflammatory Bowel Disease (IBD) and their families.1 2 It is recognised in the IBD UK Standards (statement 1.16) that all members of the IBD team should be educated to an appropriate level, and have access to professional support.3 Specialist IBD nurses within the UK report higher levels of stress and lower job satisfaction with a lack of training and development opportunities. This ultimately leads to nurses leaving both the speciality and profession.4 5 Specific educational opportunities for PIBD CNS’ are limited and they gain most of their education from attending other discipline’s educational events, or adult IBD nursing events. The authors are unaware of any formal training specifically for PIBD nurses. Recent discussions within the PIBD CNS Network, highlighted the requirement for paediatric specific education for members.

The aim of this study was to analyse the educational opportunities received to date by paediatric IBD (PIBD) CNS’ and to identify what the perceived needs are.

A steering committee organised a dedicated PIBD nurse education day. Spaces were made available for 23 PIBD CNS’; the UK has approximately 70 in total. Invites were circulated via email.

An online registration and a post-event feedback questionnaire was sent to all delegates.

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Abstract OC26 Figure 1

Number of years delegates in post

All places at the event were filled and there was a waiting list for applicants unable to secure a place. Of the 23 nurses who attended the event, 16 (70%) responded to the registration questionnaire; 12 (75%) of these nurses have been in post for 5 years or less, with 4 (25%) of those, less than a year (figure 1).

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Abstract OC26 Figure 2

Previous attendance at a dedicated educational event for PIBD

4 responders (25%) stated that they had been to previous paediatric specific education events in the past, of which 2 (50%) of these responders listed the PIBD CNS Network meetings as the prior events (figure 2).

On analysis of delegate feedback, all speakers scored 75% and above in the excellent category. Verbal responses on the day were encouraging and requests were made for further events of a similar nature. The topics that nurses felt would be helpful at future events were varied (figure 3).

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Abstract OC26 Figure 3

Topics/skills requested by delegates for future events

This study highlights the interest in specific formal education for PIBD CNS’. It also demonstrates the relatively junior taskforce and therefore invaluable need for greater peer support and education at an appropriate level. Feedback from the day indicated appreciation for both education and networking;

‘great opportunity to network’

‘sharing ideas and practice has been invaluable’

‘loads to take away, feel inspired’

‘topics discussed were relevant to my role’

‘networking with other PIBD nurses is invaluable’

With a clear lack of specific PIBD nurse events, the need for both education and networking for individuals in these roles has been established. The aim is to now continue these events, commencing with yearly education days.

References

  1. Molander P, Jussila A, Toivonen T, et al. The impacts of an inflammatory bowel disease nurse specialist on the quality of care and costs in Finland. Scand J Gastroenterol 2018;53:1463–1468.

  2. Lamb CA, Kennedy NA, Raine T, et al. British Society of gastroenterology consensus guidelines on the management of inflammatory bowel disease in adults. Gut. 2019 Dec;68(supplement 3):s1–s106.

  3. IBD UK. IBD UK standards, training and Development [Internet]. IBD UK; 2013 [cited October 2023]. Available from: https://ibduk.org/ibd-standards/the-ibd-service/training-development

  4. Macmillan Cancer Support. Voices from the frontline: workforce CPD report [Internet]. Macmillan Cancer Support; 2019 [cited October 2023]. Available from: https://www.macmillan.org.uk/_images/voices-from-the-frontlineseptember-2019_tcm9-355168.pdf

  5. Younge L, Mason I, Kapasi, R. Specialist inflammatory bowel disease nursing in the UK: current situation and future proofing. Frontline Gastroenterol. 2020 Apr 1;12(3):169–174.

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    OC26 Educating paediatric inflammatory bowel disease clinical nurse specialists: are we doing enough? (2025)

    FAQs

    What is the role of the nurse in the patient with inflammatory bowel disease? ›

    In conclusion, the IBD nurse is a valuable nursing figure within the multidisciplinary team that takes care of patients with IBD because this nurse performs important functions from both a clinical assistance point of view (such as management of fistulas, ostomies, infusion of biological drugs) and an information and ...

    Is the incidence of Paediatric inflammatory bowel disease still increasing? ›

    Despite a globally growing incidence of IBD especially in newly westernised regions a stabilisation has been reported for adults in recent years in Norway and other high-income countries. In contrast, the incidence of PIBD still appears to increase, now gaining data from countries that previously had no reported cases.

    What is an IBD nurse specialist? ›

    IBD Nurse Specialists provide expert support and advice for people living with Crohn's and Colitis that are under the care of their specialist IBD service. Find your local specialist services for Inflammatory Bowel Disease (IBD) by searching by postcode, town or clicking on the map.

    How serious is inflammatory bowel disease? ›

    IBD can increase the risk of colon cancer, which is the third most common cancer among men and women in the United States. That means it's important to know whether you have IBD so you can have the recommended surveillance colonoscopies more often.

    How can you reduce inflammation in inflammatory bowel disease? ›

    Bowel rest can reduce inflammation in the short term. If you have a stenosis or stricture in the bowel, your doctor may recommend a low-residue diet. This will help to minimize the chance that undigested food will get stuck in the narrowed part of the bowel and lead to a blockage.

    What is the survival rate for inflammatory bowel disease? ›

    After 10 years survival was 96% of that ex- pected for UC and CD. Patients with ulcerative proctitis, left-sided colitis, and pancolitis at diagno- sis had relative survival rates of 98%, 96%, and 93% respectively.

    Does inflammatory bowel disease affect life expectancy? ›

    However, people living with IBDs like Crohn's have a shorter average life expectancy than those who don't. According to the study: Females with IBD may live from 6.6 to 8.1 years fewer than females without IBD. Males with IBD may live from 5.0 to 6.1 years fewer than males without IBD.

    What is the trigger of inflammatory bowel disease? ›

    Common IBD triggers include: Antibiotics. NSAIDS (nonsteroidal anti-inflammatory drugs). Smoking cigarettes.

    What is the highest paid nurse specialist? ›

    Highest Paying Nursing Jobs
    1. Certified Registered Nurse Anesthetist. Why are Certified Registered Nurse Anesthetists (CRNA) the top-paying nursing job? ...
    2. General Nurse Practitioner. ...
    3. ICU Nurse. ...
    4. Neonatal Intensive Care Nurse. ...
    5. Psychiatric Nurse Practitioner. ...
    6. Certified Nurse Midwife. ...
    7. Clinical Nurse Specialist. ...
    8. Pain Management Nurse.
    Jul 9, 2024

    What is nurse specialist best salary? ›

    Clinical nurse specialists earn an average yearly salary of $125,340. Wages typically start from $78,070 and go up to $165,620.

    What is a specialist nurse called? ›

    A clinical nurse specialist (CNS) is an advanced practice registered nurse who has earned a master's or doctoral degree in nursing. They use their expertise to assess, diagnose, and treat patients. But their role often extends into other areas, like health care management and research.

    Which food is treatment of inflammatory bowel diseases? ›

    Between flares, eat a wide variety of foods as tolerated. This includes fruits, vegetables, whole grains, lean protein, and low-fat and nonfat dairy products. Increase your calorie and protein intake following a flare. Abdominal pain, diarrhea and decreased appetite may have caused poor food intake.

    What is the latest treatment for inflammatory bowel disease? ›

    The U.S. Food and Drug Administration (FDA) approved mirikizumab, on October 26, 2023, a highly effective new treatment for ulcerative colitis (UC), offering a new option to patients battling this chronic and debilitating inflammatory bowel disease.

    Which drug is used to maintain inflammatory bowel disease? ›

    Aminosalicylates. Aminosalicylates for IBD mainly include traditional sulfasalazine (SASP) and other types of 5-aminosalicylic acid (5-ASA) drugs.

    What is the role of the nurse in inflammation? ›

    They manage people with inflammatory arthritis, including monitoring disease, treatment and side-effects. Nurses also monitor how diseases affect a person's daily life, and how well they can participate in various work and social activities and provide support accordingly.

    What is the role of the nurse in bowel management? ›

    Nurses need to assist with healthy elimination patterns to ensure patients are having regular soft bowel movements and adequate urination and to identify abnormal patterns such as flatulence, constipation, diarrhea, incontinence, fecal impaction, hemorrhoids as well as polyuria, anuria, and other abnormalities which ...

    What is the role of the nurse in NSAIDs? ›

    To reduce adverse gastrointestinal effects, administer NSAIDs with food or milk. If the patient has a history of acidity, inform the prescriber. Notify the prescriber if the drug is ineffective. If renal or hepatic abnormalities occur, stop the drug and notify the prescriber.

    What is the role of nurse in diarrheal disease? ›

    Nurses should monitor a patient's diarrhea for worsening symptoms and subsequent alterations to nutrition, vital signs, lab values, and skin integrity. Nurses should also educate patients on diet recommendations, medication use, and hydration guidelines to prevent diarrhea.

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